I photographed my first Gus Gift session last month. I can already tell that the greatest blessing to this program is going to be meeting these amazing families, these amazing women who have gone through the unimaginable and stayed strong for their families and who came out of these experiences as stronger people.
For those of you who are not yet familiar with the Gus Gift, it is a program for families who are facing the loss of a child or who have a child who has overcome a life-threatening illness or condition. I hope to bless families who have children with cancer, conditions like Trisomy 13 and 18, who have been in a life-threatening accident or who were born dangerously premature or with a life-threatening condition. I am currently donating a session and digital files every quarter to one of these families as well as giving them a print credit equal to 15% of print sales from the previous quarter. I hope to eventually grow my business to have enough revenue to bless a family with this gift every month so please help me get the word out about my business and this program to help me meet that vision and goal!
In the meantime, I'd love to tell you about this beautiful family who was my first Gus' Gift recipient.
Meet Lillie, she is about to turn two years old. She was born on October 21, 2017, at only 25 weeks gestation via emergency c section. Her mother, Kelli, had what is known as HELLP syndrome which had caused her organs to begin to shut down. At birth Lillie only weighed 1lb 4oz and was just 8.5 inches long.
Having a child born this early, and this small is scary enough in itself but in addition to her early birth on her first day of life, Lillie developed a hole in her lung and had to have a chest tube placed.
Lillie was 12 days old before her parents were able to hold her. She spent the first 4 and a half months of her life, a total of 133 days in the NICU.
She came home on March 3rd, 2018, a month past her original due date and still on oxygen. Then in June of 2018, she stopped eating and was throwing up constantly. They had to return to the hospital for surgery to have a gtube, a feeding tube through her belly, placed. Lillie is still fed through the gtube for now but has come such a long way since her birth! I hope to have the honor to continue to see her grow as I have no doubt this little miracle is destined for great things!
I am also so inspired by Kelli her mother, despite all of the challenges of raising a young child who has additional medical needs she graduated on May 18th, 2019 with an MA in mental health counseling! I asked Kelli what one thing she would want to tell mothers at the beginning of their NICU journey and this is what she said: “It is going to be hard, possibly one of the hardest things you've ever been through. Find a way to take care of yourself. That might be taking a day away from the NICU occasionally, going to therapy, having a weekly coffee date with another mom in the NICU or a friend, or even going back to work while your baby is in the NICU.”
I am so honored to have been able to photograph this beautiful little girl and her family and to tell a little bit of their story!
If you know a family who has a child with a life-threatening illness or condition and would like to learn more about the Gus' Gift program and nominate that family please visit www.truth-photography.com/nominate
To help support this program by booking your own photo session please contact me below: